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Myodil / Arachnoiditis

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Two screen grabs of the earlier Myodil topic/thread on ACCforum NZ

 

jh-01.png.6aaf34ee04a3bacb37b35b44d6715576.png

11 pages and 31,953 views

 

Myodil_Arachnoiditis_gaffa09_john_huntly.png.0aafc615d4a3d5796d051c349d15b9c8.png

 

This topic is dedicated to our very good friend John Huntley & all other Myodil suffers.

 

I will attempt to retrieve as much of what John has already published on the previews forum -

 

Posted 30 March 2015 - 04:06 PM

People  that have been injected  with Myodil Pantopaque causing  arachnoiditis   can contact   Parliament   something  is  starting  up i believe

There are other  drugs that causing  arachnoiditis  as  well as  spinal  trauma i believe 

 

barbara.stewart@parliament.govt.nz

 

Posted 09 April 2015 - 05:13 PM

New Zealand Ministry of Health Report on Adhesive Arachnioditis... 16-8-2002


The following report was commissioned by the
New Zealand Ministry of Health.
Ministry input into the development of the report
was received from Mr Stephen Lungley and Dr Gillian Durham.

Supplementary Observations by Charles V. Burton, M.D.
Editor, Burton Report�

This report, by Peter Day and associates at the Christchurch School of
Medicine, prepared under the auspices of the New Zealand Health Technology
Assessment Clearing House, is a landmark document. This is the first time, in
a century of global medical practice, that any government agency, in any
country, has commissioned a report on this important subject.

The people of New Zealand, The New Zealand Ministry of Health and the
Christchurch School of Medicine are to be complimented for having taken on
this difficult challenge.

Any unbiased review of the subject of arachnoiditis is a difficult task because
of the paucity of prior hard science on the subject. Part of this problem has
been a lack of awareness on the part of the medical profession in general as
well as some of the medical reporting which has reflected hidden agendas
and conflicts of interest not made apparent to their readers. The foundation
for legitimate health care planning is well-performed incidence and
prevalence studies and data. Such have never yet been developed for this
disease entity.

In a manner similar to that demonstrated by the tobacco industry, there has
been an expenditure of many millions of dollars intended to obfuscate and
provide "damage control" by the manufacturers of oil mydogram substances
to thwart their being held responsible, in the legal arena, for their
transgressions against the public. This is also an important part of the
history of the arachnoiditis saga. Today, many of the leading medical
journals require full disclosure, by authors, of any real or potential conflicts
of interest- These requirements were not in place when the literature
reviewed by Day and associates was published.

Day and associates accurately point out the many limitations of the
information they reviewed but also make the point that this information base
"can produce valid results".

How "rare" is clinically significant adhesive arachnoiditis?

It has become clear that every person who has ever had a oil mydogram (i.e.
lipiodol, pantopaque or myodil) has been left with permanent scarring of
their pia-arachnoid membranes and some related impairment of
cerebrospinal fluid production. From the 1940s to the 1980s there were
approximately 1 million oil myetograms performed each year throughout the
world. Scarring of the meninges secondary to exposure to these foreign body
substances occurred in every single case. How many of these situations
progressed to the stage of advanced "chronic adhesive arachnoiditis" is
simply not known. The actual number of cases is which this inflammatory
process ascended up the spine to the brain producing death is also not
known. Sensitivity to inflammation is now known to be a complex process
involving issues such as the individual's own immunotogic makeup.

It is readily apparent that although prevalence data is lacking the numbers of
those afflicted with meningeal scarring is quite high. What then is the
incidence of those individuals from this group who have become disabled by
this condition (referred to as:("clinically significant adhesive arachnoiditis"?)
What is "rare"? Its meaning is different to each beholder. Long has
estimated that 1 of those with adhesive arachnoiditis are "clinically
significant". This editor believes that 5 is a more accurate estimate.
Why is the prevalence of chronic adhesive arachnoiditis so high and clinically
significant adhesive arachnoiditis so low? The answer to this enigma may
very well lie in the remarkable ability of the human body to successfully deal
with insult and injury if the progression of adversity is sufficiently slow. This
is particularly true of the nervous system. This means that if the progression
of an inflammatory process is sufficiently slow the nerves are then allowed to
have the opportunity of surviving in their function despite progressive
encapsulation with scar, progressive loss of vascular supply and progressive
decrease in nutrition normally supplied by the surrounding cerebro-spinal
fluid. This also means that if the nerves are not allowed to have the
opportunity of accommodating they then signal their distress to the brain by
transmitting constant nociceptive information. The nature of the resulting
regional complex pain disorder is very often totally disabling to the
individual.

This also means that many who have the scarring and are asymptomatic
exist in a precarious state. Additional insult can, in these cases, upset the
balance producing decompensation and associated clinically evident
problems. This type of situation is well known in medicine where large,
benign, brain tumors progressively enlarge over many years and a minor
incident (i.e. being struck in the head with a soccer ball) causes
decompensation, unconsciousness, and even death. In the adhesive
arachnoiditis cases the additional insult can be another myelogram, trauma
such as a motor vehicle accident, or even an additional spinal surgery.
It is interesting to observe that clinically significant "chronic adhesive
arachnoiditis" may be infrequent, or even "rare", compared to the huge
reservoir of existing cases. But it is also important to point out that even if
these individuals appear normal they live with a "sword hanging over their
heads" and are typically unaware of this liability. It is also important to
recognize that even if there is no apparent clinical problem significant bodily
injury has occurred. This is a situation similar to the "post-polio syndrome"
where individuals afflicted with poliomyelitis at a eariy age loose many of
their spinal neurons to the viral infection. Many individuals appear to recover
completely and clinical problems may only become evident later in life when
the paucity of remaining neurons is diminished further by the process of
aging, are no longer able to meet the needs of the body.

If it is a "rare" entity why should New Zealand, and the rest of
the world, be concerned with "clinically significant adhesive
arachnoiditis"?

There are few disease processes more cruel and disabling than adhesive
arachnoiditis when it is "clinically significant". The nature of the constant
pain is such that it prevents NORMAL ACTIVITY, INTELLECTUAL PURSUITS and SLEEP.
Adhesive arachnoiditis does not affect longevity and sufferers do not have the
relative blessing of the limited life expectancy afforded by terminal cancer.

These individuals are non-productive and require long-term supportive care.

It would have been nice to see that with the phasing out of oil myelography
in the early 1980s that the issue of adhesive arachnoiditis would have
become something of only historic interest- This has not been the case- The
advent of Epidural Steroid Injection as a Primary Treatment for Back Pain has
created new populations of sufferers. How rare is this? Once again data on
incidence and prevalence do not exist. In the United States the most reliable
data on incidence are the number of physicians being brought to court by
their patients. This sad state of affairs seems to reflect only ignorance on the
part of physicians and their patients as epidural steroid administration can
(and should be) a safe procedure performed with appropriate INFORMED
CONSENT.

What needs to be done?

As correctly noted by Day and associates scientific study and further
assessment of this disease entity are required. The most important role of
this report, in my opinion, is being a first step in promoting awareness. In
1968 ago a physician wrote a letter to the editor of the New England Journal
of Medicine noting that whenever he ate at a Chinese restaurant he would
experience symptoms similar to those of a heart attack. Before long there
were similar experiences shared by a multitude of other physicians. The
entity became referred to as "the Chinese restaurant syndrome".
Investigation finally determined that a hypet sensitivity to monosodhnn
glutamate (NSG) and high salt content in the food appeared to be the
etiology of this entity.

Only with increased awareness will physicians and patients begin to suspect,
and then identify adhesive arachnoiditis. It should not be that a popular
treatment for low back pain be allowed to create devastating disease for the
patient. How much is the prevention of this sad patient experience worth to a
concerned health care system?

The importance of awareness

In 1926 French neurologists Foix and Alajouanine published the description
of a pathologic entity producing adhesions, spinal cord degeneration and
paralysis. We now appreciate that the Poix-AIajouanine syndrome probably
represented a congenital arterio-venous malformation of the spinal cord
associated with small intermittent bleeds producing local adhesive
arachnoiditis, spinal cord restriction and impairment of blood supply
producing mydomalacia, cavitation and neurologic problems. This appears to
have been the first medical description of adhesive arachnoiditis. 
Is this something of only historic interest?

Recently the editor has become aware of a number of cases in which epidural
injections for the purpose of analgesia were used to assist in childbirth in
young and previously healthy women. Following these injections the women
developed severe, and in some cases permanent, neurologic problems.
Subsequent imaging studies documented thoracic adhesive arachnoiditis.
Although these were standard epidural injections the anesthesiologists
involved have been accused of producing the problem. From reviewing the
MRI studies I am convinced that these situations represented long-standing
cases of clinically insignificant Fbix-Alajouanine syndrome activated by the
epidural injection (probably the included epinephrine) and thus becoming
"clinically significant".

How many anesthesiologists know about the Foix-Alajouanine syndrome,
adhesive arachnoiditis, or the dangers of injecting foreign body substances
into the subarachnoid space? This knowledge is truly a "rare" situation.

Appreciation to the New Zealand Ministry of Health

The literature review by Day and associates is a really important
contribution, it is also something, which should have been done a long time
ago by Health agencies in the United States or England. New Zealand clearly
has less resource available than these world neighbors. The fact that
concerned citizens were able to reach the responsive ears of government to
commission a valuable first-step technology assessment is exemplary and
worthy of acknowledgement. The editor's highest compliments and personal
appreciation are extended to all involved.

And our highest compliments to you Doctor Burton for being there for us.

....................................................................................................
Big Question here is... 
Why are these proceedures still being done, when it is clear the damage it does.?
ACC has accepted some cases of Chemically Induced Adhesive Arachnoiditis,
Under Med Mis-adventure/ Med Mis-hap...
Gaffa09 clearly has this problem, I see see effects of, this on a regular basis.
and it was he who has to date exposed and produced most of the info that has assisted others in their claims...
SO WHY WILL ACC NOT ACCEPT HIS CLAIM IN THIS...???
They have "closed" his file on this...
Read the rest of whats here on this subject....

From The British House of Commons.

 

 

Posted 09 April 2015 - 05:20 PM

Posted 05 February 2006 - 03:57 PM

This is what I have to date re my file and also what I have on file 

Myodil injected 6cc 1979 OP after.heard my own screems come back at me trouble ever since
Myodil also injected 1987 6cc 

MR Doc Russel Worth Wellington { Scum bag,}

For 6 months after coming out of hospital complained to him in what was happening In a confidence document to ACC,he called me a malingerer and so on,
Through my Lawyer in the 1990s wrote to Russel Worth for full copies of my files , This was not carried out , Letter from Russell worth , statement ,
Have send files for vetting and after vetting you can have the rest.,
About same time found out that MR Russell Worth was on the board of the ACC medical team, {Ho dearie dearie me }
Letter from state insurance re ACC Mr Huntleys claim 
Also in 2 separate letters to my lawyer has admitted that Myodil is a major problem but tried to pull the statue of limitations saying this was out of time ,Have copies ,

Symptoms, as was in hospitals , HAVE ALL WELLINGTON hospital notes
Dizzy spells , massive headache, Blackouts , unbalanced , electric shocks through whole body , eye troubles , bad pain in neck like surgeons knife still there , middle spine now with trouble where needle went in can�t sleep and troubles with lower part of spine 12 years ago started with bowel, and bladder problems ,
Sex well that doesn't work well at all only some times if i am lucky 
In 3 weeks after coming out of hospital lost wife, now left with 5 children ,
Fell down steps twice due to blackout , dizzy spells on record more trouble .Muscle spasms
Can�t peel potatoes can�t walk properly couldn�t go to toilet with out massive pain ,
Taken off ACC April 1980 By Russel Worth who was instructed by ACC Mr Otterway .
Doc Hunters report, dated 21st August 1981 covers all 
Doc Hornabrooks report made promises to invest ergate myodil { didn�t happen}
==================================================
Years went by pain now is in legs, feet ,toes, fingers, arms, hospitalize for heart condition , stroke like symptoms, this all about and up too 1985 ,reinstated back on ACC april 1985 ,
Myelogram napier 17th of July 1985 carried out by Mr Shipp the same one and only, that did the first one in 1979 under Russell Worth 
Residual myodil also found in base of spine 
Letters from Mr Gale Curtis , Orthopaedic surgeon
Letter dated 1st sept 1988 
In OCT 1987 MUA of spine
50% restricted 

Hospital Taumarunui 26 July 1989 heart attack systems dizziness, upper limbs feel weak , off balance,
At this time now I feel as if my head won�t stay on my shoulders .
Taumarunui Hospital date 31st Oct 1989 another fall damaged ribs 
Waikato Hospital dated 2 nov 1987 Diagnosis Chronic neck bilateral arm pain
Waikato Hospital 21st Feb 1990 cervical instability to be accepted.
Gale Curtis march 21st 1990 getting back to work is zero A two level anterior interbody arthrodesis could be undertaken
Dr G.P. Miles approved by ACC damaging report 
Wakefield Medical centre Dr Graham Martin report covers above .
12 May report disability 30%, and comments about Russel Worth, {What a pack s... }
Now in this time I have had another 6cc of myodil injected by gale Curtis Napier hospital and another Op= fusions of neck bone taken from hip 
Dr Ian Macpherson report out come of more surgery not good.
22nd June 1993 letter from Dr little my now GP,
Myodil in brain after he sent me to Wanganui hospital thought I had tumours on brain... The real start of investigating myodil 
1994 now come mood swings, irritable, angry, depressed very tired
Progressive medical imaging dated 25th July 1994 marked degenerative changers c section and l section 
Letter to ACC from russell Worth 27th July 1994 {go you }
Bakes report 28th July 1994 back up spinal problems 
Massey University 1st August 1994 re now mental health good report for me .
4th of August refusal to supply Russell Worth info from my x-rays and files ,
Russells Worths report 22nd of August 1994 
Admission of problems with myodil pulls the statute of limitations on us 
Damming report on both medical and myodil. Have copies 
Wanganui Hospital 12 th Sept Why is myodil used , And in other countries .
11th Oct wanganui hospital a limited CT scan preformed Question why a limited ? Paid for by ACC
20th Oct 1994 from Russell Worth in his words 
There is no doubt that myodil in the subarachnoid space causes Arachnoiditis.
He goes on. Mr Huntleys problem is related to chronic pain in his arms 
This may be due to Mechanical instability or to arachnoiditis of the cervical spinal nerves
30th of dec 1994 visual fields test for eyes effected by myodil I failed tests 
2 OP on eyes to follow paid for by ACC won�t accept F. Howes FCS {SA }<FRCS {ED}> FRCOphth report is that good enough .
6th april 1995 bakers report 5 pages talks about mydil, and also spondylosis
5th of OCT Russell Worth to lawyer I have had the whole file vetted by Jenny Gibson of the medical protection society .
17th Oct 1995 Hornabrook report 
In report statement re myodil
I will be happy to try and help clarify the issue { THEN HE WENT AND 
RETIRED)
5th March report by Mr F Howes eye surgeon this may be related to a possible arachnoiditis .

Reports from Gil Newburn 1997
Grant gillett not a good report also lost x-rays also I cost his boss his job ,
.
Then comes the asshole Dr Alastair K Wilson ACC assessor need I say more 
30th Nov 1999 Whangarei hospital , Black out causing fracture of L1 
Another black out 25th May 2001 hospital report split head open repaired and sent home 
Ho yes ACC wouldn�t pay for st johns ambulance,
Have all documents 
15th Oct 2001 Northland health pick up severe sloping sensorineural hearing loss in both ears .
Gee that most come from the yelling ACC have done .
In inquiring this may have stemmed from the days in the fire service .
23rd Aug 2002 from Vision care in short unusually lower blood pressure in head possible cause Myodil reports of arachnoiditis secondary to the use of myodil
But my doctor is treating me for high blood pressure 
26th of sept 2003 Burtons health care ACC wanted me to go to this what a waste of time and money By the way her bill was $1910.00 yet they cant pay me what I am entitled too.
I also forgot to say that ACC spent big money on me investigating me back in the mid 1990s 
Nerve conduction tests which I have had also not carried out by world standards 
I have also over 3000 pages on Myodil in one lot alone Half this amount again from Aussie, some from Canada. Some from Dr Burton, How the hell do I put all this up on site ,
Letters from Glaxo, health Dept, 
In short ACC opinion is that it is all in my head , (Yeah right... 6cc of Myodil.)

You judge , 

This is only some of the medical files I have I would be writing all day ,

vvvvvvvvvvvvvvvvvvvvvvvvvvvvvvvv

 

today i have had  to live  with them all  and  adjust  to them   the pain is  what gets me , unbalanced  dizzy  spells  electric  shocks   and  my head out in space  

 

====================================================================================

 

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Posted 10 April 2015 - 10:40 AM

Re: New Zealand Ministry of Health Report on Adhesive

03-Nov-07 13:38:35

House of Commons Hansard Debates for 19 May 2 ... 
Page3 of 3 
be made and dealt in a non-legal manner where appropriate and that the rights of the individuals are protected for as long as necessary--in the circumstances described by my hon. Friend, for example. 
Mr. Collins: I have a couple of brief points to make. My hon. Friend the Member for Runoymede and Weybridge (Mr. Hammond) and the hon. Member for Ellesmere Port and Neston (Mr. Miller) have made some important remarks about new clause 7, which was tabled by the hon. Member for Hendon (Mr. Dismore). As I listened to the hon. Gentleman's speech, however, 1 found myself agreeing with him, which I have not done for three years: he made some good points. 
Although the hon. Member for Ellesmere Port and Neston referred to a constituency case that led him to one conclusion--it is always right to bear in mind that hard 
19 May 2000: Column 587 
cases can make bad law--I was reminded of a constituency case that leads me to believe that the points made by the hon. Member for Hendon need to be taken seriously, even if new clause 7 may not be perfect. 
My constituency case is directly relevant to determining whether the time limit should constitute an absolute three-year cut-off after a practitioner has left service or whether, as the hon. Member for Hendon said, the opportunities available in common law should apply enabling the victim to take action after the information has become available to them. 
More than 20 years ago, a chemical called Myodil was injected into my constituent's spine. Many of those who have had such an injection have subsequently suffered from adhe~ve arachnoiditis--a !errible condition that has rightly been described as involving all the pain of terminal cancer without the prospect of relief.,My constituent was not tolOtfiat that was t~ cause of her back problem for 20 years; successive medical practitioners said that it was associated with the condition of her spine. By obtaining copies of the medical notes, she found out that, as far back as the early 1970s, doctors had written that she was suffering from adhesive arachnoiditis, but for nearly two decades they did not tell her that that was the cause of the excruciating pain in which she has lived. As the hon. Member for Hendon said, someone in those circumstances would have the right to take legal action, but my constituent has repeatedly made it clear that she is not interested in seeking large sums of compensation. She realises that nothing can be done to end that appalling pain, which has completed destroyed her life and means that she can only walk with extreme difficulty. The live that she previously led as an active tennis player has been ended. She wants an investigation into what occurred to be undertaken and published, which would be a more proper role for the ombudsman. It would be difficult for an ombudsman's inquiry to go back over such a period, but I would not want us lightly to pass a law that would make that impossible in all circumstances. 

 

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Posted 10 April 2015 - 10:43 AM

#4    gaffa09

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Posted 05 February 2006 - 03:57 PM

 

This is what I have to date re my file and also what I have on file 

Myodil injected 6cc 1979 OP after.heard my own screems come back at me trouble ever since
Myodil also injected 1987 6cc 

MR Doc Russel Worth Wellington { Scum bag,}

For 6 months after coming out of hospital complained to him in what was happening In a confidence document to ACC,he called me a malingerer and so on,
Through my Lawyer in the 1990s wrote to Russel Worth for full copies of my files , This was not carried out , Letter from Russell worth , statement ,
Have send files for vetting and after vetting you can have the rest.,
About same time found out that MR Russell Worth was on the board of the ACC medical team, {Ho dearie dearie me }
Letter from state insurance re ACC Mr Huntleys claim 
Also in 2 separate letters to my lawyer has admitted that Myodil is a major problem but tried to pull the statue of limitations saying this was out of time ,Have copies ,

Symptoms, as was in hospitals , HAVE ALL WELLINGTON hospital notes
Dizzy spells , massive headache, Blackouts , unbalanced , electric shocks through whole body , eye troubles , bad pain in neck like surgeon’s knife still there , middle spine now with trouble where needle went in can’t sleep and troubles with lower part of spine 12 years ago started with bowel, and bladder problems ,
Sex well that doesn't work well at all only sometimes if i am lucky 
In 3 weeks after coming out of hospital lost wife, now left with 5 children ,
Fell down steps twice due to blackout , dizzy spells on record more trouble .Muscle spasms
Can’t peel potatoes can’t walk properly couldn’t go to toilet without massive pain ,
Taken off ACC April 1980 By Russel Worth who was instructed by ACC Mr Otterway .
Doc Hunters report, dated 21st August 1981 covers all 
Doc Hornabrooks report made promises to invest ergate myodil { didn’t happen}
==================================================
Years went by pain now is in legs, feet ,toes, fingers, arms, hospitalize for heart condition , stroke like symptoms, this all about and up too 1985 ,reinstated back on ACC april 1985 ,
Myelogram Napier 17th of July 1985 carried out by Mr Shipp the same one and only, that did the first one in 1979 under Russell Worth 
Residual myodil also found in base of spine 
Letters from Mr Gale Curtis , Orthopaedic surgeon
Letter dated 1st sept 1988 
In OCT 1987 MUA of spine
50% restricted 

Hospital Taumarunui 26 July 1989 heart attack systems dizziness, upper limbs feel weak , off balance,
At this time now I feel as if my head won’t stay on my shoulders .
Taumarunui Hospital date 31st Oct 1989 another fall damaged ribs 
Waikato Hospital dated 2 nov 1987 Diagnosis Chronic neck bilateral arm pain
Waikato Hospital 21st Feb 1990 cervical instability to be accepted.
Gale Curtis march 21st 1990 getting back to work is zero A two level anterior interbody arthrodesis could be undertaken
Dr G.P. Miles approved by ACC damaging report 
Wakefield Medical centre Dr Graham Martin report covers above .
12 May report disability 30%, and comments about Russel Worth, {What a pack s... }
Now in this time I have had another 6cc of myodil injected by gale Curtis Napier hospital and another Op= fusions of neck bone taken from hip 
Dr Ian Macpherson report out come of more surgery not good.
22nd June 1993 letter from Dr little my now GP,
Myodil in brain after he sent me to Wanganui hospital thought I had tumours on brain... The real start of investigating myodil 
1994 now come mood swings, irritable, angry, depressed very tired
Progressive medical imaging dated 25th July 1994 marked degenerative changers c section and l section 
Letter to ACC from Russell Worth 27th July 1994 {go you }
Bakes report 28th July 1994 back up spinal problems 
Massey University 1st August 1994 re now mental health good report for me .
4th of August refusal to supply Russell Worth info from my x-rays and files ,
Russells Worths report 22nd of August 1994 
Admission of problems with myodil pulls the statute of limitations on us 
Damming report on both medical and myodil. Have copies 
Wanganui Hospital 12 th Sept Why is myodil used , And in other countries .
11th Oct wanganui hospital a limited CT scan preformed Question why a limited ? Paid for by ACC
20th Oct 1994 from Russell Worth in his words 
There is no doubt that myodil in the subarachnoid space causes Arachnoiditis.
He goes on. Mr Huntleys problem is related to chronic pain in his arms 
This may be due to Mechanical instability or to arachnoiditis of the cervical spinal nerves
30th of dec 1994 visual fields test for eyes effected by myodil I failed tests 
2 OP on eyes to follow paid for by ACC won�t accept F. Howes FCS {SA }<FRCS {ED}> FRCOphth report is that good enough .
6th april 1995 bakers report 5 pages talks about mydil, and also spondylosis
5th of OCT Russell Worth to lawyer I have had the whole file vetted by Jenny Gibson of the medical protection society .
17th Oct 1995 Hornabrook report 
In report statement re myodil
I will be happy to try and help clarify the issue { THEN HE WENT AND 
RETIRED)
5th March report by Mr F Howes eye surgeon this may be related to a possible arachnoiditis .

Reports from Gil Newburn 1997
Grant gillett not a good report also lost x-rays also I cost his boss his job ,
.
Then comes the asshole Dr Alastair K Wilson ACC assessor need I say more 
30th Nov 1999 Whangarei hospital , Black out causing fracture of L1 
Another black out 25th May 2001 hospital report split head open repaired and sent home 
Ho yes ACC wouldn’t pay for st johns ambulance,
Have all documents 
15th Oct 2001 Northland health pick up severe sloping sensorineural hearing loss in both ears .
Gee that most come from the yelling ACC have done .
In inquiring this may have stemmed from the days in the fire service .
23rd Aug 2002 from Vision care in short unusually lower blood pressure in head possible cause Myodil reports of arachnoiditis secondary to the use of myodil
But my doctor is treating me for high blood pressure 
26th of sept 2003 Burtons health care ACC wanted me to go to this what a waste of time and money By the way her bill was $1910.00 yet they cant pay me what I am entitled too.
I also forgot to say that ACC spent big money on me investigating me back in the mid 1990s 
Nerve conduction tests which I have had also not carried out by world standards 
I have also over 3000 pages on Myodil in one lot alone Half this amount again from Aussie, some from Canada. Some from Dr Burton, How the hell do I put all this up on site ,
Letters from Glaxo, health Dept, 
In short ACC opinion is that it is all in my head , (Yeah right... 6cc of Myodil.)

You judge , 

This is only some of the medical files I have I would be writing all day ,

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Posted 18 April 2015 - 09:31 AM

View how ACC treats Myodil Dye victims.

 

 

Video No Longer available

http://youtube.com/embed/tX_eSwLAGXU?html5=1&amp;fs=1" frameborder="0" allowfullscreen webkitallowfullscreen

 

Some excellent investigative journalism from the 60 minutes team and Genevieve Westcot.

 

This was shown on TV in 1996, and still today the ACC are continuing to make life difficult for Myodil victims.

 

John Huntley, Carol Bampbell and a group of others speak about their experience

 

 

Please note: It's an old video and hasn't converted too well to youtube format.

 

60minutes_letter_to_john_huntly.jpg.6a7203844a4b3a01193692a1a983a163.jpg

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